Gathering tons of information

Continuing on my quest to be cured from chronic lyme disease. I have been doing lots of work and research. Had a great consulting session with Perry Fields today. She is an athlete [runner], who came back from a 4-year bout with lyme disease and is now healthier than ever. The single most inspiring person I have met yet in the lyme community. I so want the same outcome as she.

I'm taking lots of supplements now, mostly vitamins -- suggested by a doctor who also practices alternative medicine [Dr. Firshein in NYC]. I'm also getting Vitamin B-12 shots and vitamin infusions once/week in his office. Perry Fields gave me an enormous amount of information -- supplements to take, a machine to try ... lots to absorb. She recommends seeing a holistic dentist to have the mercury amalgams removed -- this is something I had wanted to do for a long time.

I'm spending a lot of time figuring this out -- it's become a full-time job! I'm on the Buhner Yahoo site. Haven't taken his herbs yet [based on Stephen Buhner's book 'Healing Lyme'] except for Reseveratol, which I am taking every day. I'm still on IV Rocephin and I believe that is keeping me in a holding pattern right now; however, that treatment is set to end next week. As glad as I will be to not have an IV in my arm, I am nervous about what will happen when I come off of the treatment.

There is lots more to do, that I need to get started with. I can't believe that one bug bite could cause so much ongoing illness for so long. And I'm not even hitting one year yet! It's really been a tough road, and an emotional roller coaster.

I wrote a letter to my neurologist this week, letting him know how I felt about being misdiagnosed for months. For a trained doctor to look at you and say it looks like you have lyme disease, and then to discount it because your first test [taken the same month that symptoms appeared] was negative, is terrible. I am most angry at him, but trying not to hold onto the past, even though his misstep kind of wrecked my life for a while.

Aside from that, I'm really trying to be hopeful and have a good attitude. There are people out there with chronic lyme who are better and I plan to be one of them, no matter how long it takes [and hopefully it won't take too long].